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Below are a few helpful resources that I have used along my journey.

  • I want more information on EDS
    My favorite sites to learn from are: The Ehlers Danlos Society Ehlers Danlos Support UK
  • I want to find a doctor that knows about EDS
    If you suspect you or a loved one might have EDS, I have found it is very helpful to have a care team that understands the condition. The Ehlers Danlos Society is a great resource for finding a provider near you that is knowledgable on the condition.
  • The Best Book About EDS
    This has by far been my favorite resource: "Understanding Hypermobile Ehlers Danlos Syndrome and Hypermobility Spectrum Disorder" by Claire Smith
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