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ZeBrave Blog Posts/I created this blog mostly for my own personal record, but also for those who are interested in my story as a dance teacher with Ehlers Danlos Syndrome.
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Sami
Apr 14, 20233 min read
LIFE UPDATE - 4/12/23
Surgery, shots, sleep studies, and more!
Sami
Mar 27, 20234 min read
Disney & EDS
What is it like to Disney with EDS?? Here are some things I learned on my Disneyland trip!
Sami
Jan 21, 20234 min read
The EDS Clinic
My experience with Washington's first EDS Clinic!
Sami
Oct 22, 20223 min read
I Am Tired. Really Tired.
My experiences with Ehlers Danlos and Fatigue.
Sami
Sep 17, 20222 min read
It's National Dance Day!
Dance is what continues to put me into my pain pattern. So why do I do it when I had multiple doctors tell me to just stop?
Sami
Sep 9, 20222 min read
1 Year After Being Diagnosed -LIFE UPDATE
It's been a little over a year since being diagnosed with Hypermobile Ehlers Danlos Syndrome. I figured I would post a little life update!
Sami
May 8, 20222 min read
May is EDS Awareness Month!
May is EDS Awareness Month, what can you do to support the EDS community this month??
Sami
May 2, 20223 min read
Mental Health with Physical Illness
When creating a time line of when I started to have a significant amount of anxiety, it is hard to ignore that those symptoms started at the
Sami
Feb 28, 20223 min read
A Doctor a Day Keeps the ... Wait That's not Right is it?
This week, I had a different Doctor's appointment almost every day. Here's a little update on how my life's going!
Sami
Dec 14, 20212 min read
The Price of EDS
When I say price, I literally mean the money: cash: dough: moolah. What does it cost to pay for a chronic condition?
Sami
Aug 25, 20214 min read
The Trials and Errors (With Mostly Errors)
Before my official diagnosis, I have had multiple doctors tell me that they could solve my pain. Do you think any of them were helpful?
Sami
Aug 14, 20212 min read
What's With The Zebras?
And now I will guide you through an imaginative scenario. Close your eyes. Okay, actually open your eyes because you have to read the...
Sami
Aug 14, 20212 min read
Where To Start?
I'm realizing the beginning of my story difficult to find; most likely because it's crazy to think about how long ago everything started....
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