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  • Writer's pictureSami

May is EDS Awareness Month!

It hasn't even been a year since being diagnosed with EDS, but it feels like so much longer (probably because Ive had symptoms for 15 years). I started this blog for the purpose of keeping track of my journey after being diagnosed, and it's already been a whirlwind of a ride.

What can you do to support the EDS community this month??

1. Educate yourself!

  • The most beneficial and free way to help the EDS community is just to learn about the condition. Due to the lack of education, many medical professionals (not to mention the general population) either A., do not know about EDS, or B., do not know enough about EDS.

  • In order to receive funding for research, the EDS has to receive more attention.

  • You can read my first post, Where to Start, and/or visit my favorite resource, The Ehlers Danlos Society for more information on what EDS actually is.

2. Buy one of my shirts!

  • Click Here to see them

  • I donate any proceeds to various EDS causes

3. Show your stripes!🦓

  • EDS is represented by Zebras. Why you ask? Check out my post, What's With The Zebras? Rock some zebra print this May to show your support!

4. Donate!

  • The Ehlers Danlos Society is an outstanding organization, and they use their money to help educate medical professionals, spread awareness, and so much more! Donate Here

5. For Medical Professionals: Join EDS Echo!

  • "EDS ECHO is a free, virtual program from The Ehlers-Danlos Society, for healthcare professionals, across all disciplines, living anywhere in the world. There are several programs taking place via Zoom, educating healthcare professionals to improve their knowledge to better care for their patients with EDS, HSD, and associated symptoms and conditions. Continuing Education credits are available at no charge to participants." - Ehlers Danlos Society

Be Brave. Stay Kind. Much Love.



May 19, 2022

Love these concrete steps you laid out


May 08, 2022

You are so inspiring! Love you!!

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