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ZeBrave Blog Posts/I created this blog mostly for my own personal record, but also for those who are interested in my story as a dance teacher with Ehlers Danlos Syndrome.
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Sami
Apr 14, 20233 min read
LIFE UPDATE - 4/12/23
Surgery, shots, sleep studies, and more!
Sami
Mar 27, 20234 min read
Disney & EDS
What is it like to Disney with EDS?? Here are some things I learned on my Disneyland trip!
Sami
Jan 3, 20234 min read
Is It Broken? - My Special Foot
One of the joys **sarcasm** of EDS is having a lot of test results come back negative, even though you are symptomatic and the pain doesn't
Sami
Nov 14, 20223 min read
EDS & Tap Dance
Come shuffle along and see what it's like to be a Tap Dancer with Hypermobile Ehlers Danlos!
Sami
Oct 22, 20223 min read
I Am Tired. Really Tired.
My experiences with Ehlers Danlos and Fatigue.
Sami
Sep 17, 20222 min read
It's National Dance Day!
Dance is what continues to put me into my pain pattern. So why do I do it when I had multiple doctors tell me to just stop?
Sami
Sep 9, 20222 min read
1 Year After Being Diagnosed -LIFE UPDATE
It's been a little over a year since being diagnosed with Hypermobile Ehlers Danlos Syndrome. I figured I would post a little life update!
Sami
Jul 18, 20222 min read
My Shoulder is Depressed
The best ways I help my depressed shoulder!
Sami
Jun 23, 20222 min read
What's Black and White, and Red All Over? : Skin and EDS
A picture guide to common characteristics of EDS skin!
Sami
May 24, 20223 min read
Hello EDS, Meet Your Friend POTS
My PCPC said, "not only is EDS very probable, but I think you also have something called POTS."
Sami
May 8, 20222 min read
May is EDS Awareness Month!
May is EDS Awareness Month, what can you do to support the EDS community this month??
Sami
May 2, 20223 min read
Mental Health with Physical Illness
When creating a time line of when I started to have a significant amount of anxiety, it is hard to ignore that those symptoms started at the
Sami
Mar 29, 20222 min read
There's Broccoli in my Shoulder?
Today at the doctor I looked at the ultrasound screen, and it looked like there was a piece of broccoli going through my tendon.
Sami
Feb 28, 20221 min read
Ehlers Danlos Society
I had to post really quick because I just found out that I am featured on the Ehlers Danlos Society website!
Sami
Feb 28, 20223 min read
A Doctor a Day Keeps the ... Wait That's not Right is it?
This week, I had a different Doctor's appointment almost every day. Here's a little update on how my life's going!
Sami
Jan 31, 20222 min read
Hand Surgery Weeks 3-6
6 weeks ago I had hand surgery to fix 10 (😅)different things. Here is an update of weeks 3-6.
Sami
Dec 28, 20215 min read
Hand Surgery Play Book
On December 20th I had a 2.5 hour hand surgery to improve grip and internally reattach my thumb. This is a timeline of how it went!
Sami
Dec 23, 20212 min read
Hand Surgery Before Christmas
This year for the Holidays, I gave myself the gift of surgery.
Sami
Oct 22, 20215 min read
The Surgery I Thought Would Change My Life
The story of my shoulder arthroscopy in 2019 that surprised my surgeon.
Sami
Oct 9, 20213 min read
Update! (10/2021)
Time for a little update! I've had quite a few eventful experiences in the past month worth mentioning.
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