Sami
LIFE UPDATE - 4/12/23
Surgery, shots, sleep studies, and more!
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Blog
ZeBrave Blog Posts/I created this blog mostly for my own personal record, but also for those who are interested in my story as a dance teacher with Ehlers Danlos Syndrome.
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Sami
- Mar 27, 2023
- 4 min
Disney & EDS
What is it like to Disney with EDS?? Here are some things I learned on my Disneyland trip!
Sami
- Jan 3, 2023
- 4 min
Is It Broken? - My Special Foot
One of the joys **sarcasm** of EDS is having a lot of test results come back negative, even though you are symptomatic and the pain doesn't
Sami
- Nov 14, 2022
- 3 min
EDS & Tap Dance
Come shuffle along and see what it's like to be a Tap Dancer with Hypermobile Ehlers Danlos!
Sami
- Oct 22, 2022
- 3 min
I Am Tired. Really Tired.
My experiences with Ehlers Danlos and Fatigue.
Sami
- Sep 17, 2022
- 2 min
It's National Dance Day!
Dance is what continues to put me into my pain pattern. So why do I do it when I had multiple doctors tell me to just stop?
Sami
- Sep 9, 2022
- 2 min
1 Year After Being Diagnosed -LIFE UPDATE
It's been a little over a year since being diagnosed with Hypermobile Ehlers Danlos Syndrome. I figured I would post a little life update!
Sami
- Jul 18, 2022
- 2 min
My Shoulder is Depressed
The best ways I help my depressed shoulder!
Sami
- Jun 23, 2022
- 2 min
What's Black and White, and Red All Over? : Skin and EDS
A picture guide to common characteristics of EDS skin!
Sami
- May 24, 2022
- 3 min
Hello EDS, Meet Your Friend POTS
My PCPC said, "not only is EDS very probable, but I think you also have something called POTS."
Sami
- May 8, 2022
- 2 min
May is EDS Awareness Month!
May is EDS Awareness Month, what can you do to support the EDS community this month??
Sami
- May 2, 2022
- 3 min
Mental Health with Physical Illness
When creating a time line of when I started to have a significant amount of anxiety, it is hard to ignore that those symptoms started at the
Sami
- Mar 29, 2022
- 2 min
There's Broccoli in my Shoulder?
Today at the doctor I looked at the ultrasound screen, and it looked like there was a piece of broccoli going through my tendon.
Sami
- Feb 28, 2022
- 1 min
Ehlers Danlos Society
I had to post really quick because I just found out that I am featured on the Ehlers Danlos Society website!
Sami
- Feb 28, 2022
- 3 min
A Doctor a Day Keeps the ... Wait That's not Right is it?
This week, I had a different Doctor's appointment almost every day. Here's a little update on how my life's going!
Sami
- Jan 31, 2022
- 2 min
Hand Surgery Weeks 3-6
6 weeks ago I had hand surgery to fix 10 (😅)different things. Here is an update of weeks 3-6.
Sami
- Dec 28, 2021
- 5 min
Hand Surgery Play Book
On December 20th I had a 2.5 hour hand surgery to improve grip and internally reattach my thumb. This is a timeline of how it went!
Sami
- Dec 23, 2021
- 2 min
Hand Surgery Before Christmas
This year for the Holidays, I gave myself the gift of surgery.
Sami
- Oct 22, 2021
- 5 min
The Surgery I Thought Would Change My Life
The story of my shoulder arthroscopy in 2019 that surprised my surgeon.
Sami
- Oct 9, 2021
- 3 min
Update! (10/2021)
Time for a little update! I've had quite a few eventful experiences in the past month worth mentioning.
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